Tuesday, February 16, 2010

jeans for genes 1 in pictures




Thursday, February 11, 2010

Jeans for Genes...Second Time Around!

Jeans for Genes, one of the events organised by THESE GENES sickle-cell project, was a huge success first time round! With Fashion houses like Beampeh, Byge and My Q exhibiting, and artistes like Etcetera, M.I, Sage, MP and Bez performing, Jeans for Genes provided entertainment, awareness, and a platform!
This year, JEANS FOR GENES is back! And this time, as a teeshirt party!
Just remember, teeshirt + music = JEANS FOR GENES 2; Teeshirt Party!
Jeans for Genes 1 held at Swe Bar, and the swanky bar is once again, proving its commitment to giving back and supporting the arts, by hosting the event this year! So come March 27th 2010, Lagos will once again, celebrate fashion (teeshirts), music, and a disorder that affects every family in Nigeria!
Sickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin* S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickle-shaped (crescent shaped) and have difficulty passing through small blood vessels.


When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease.
THESE GENES is a sickle-cell project which seeks to create awareness about the disorder through events, publications and appearances.
JEANS FOR GENES is an awareness based event, but money will be raised at the event to help a lady living with sickle-cell and currently suffering complications from an operation, with her hospital bills.
While the final list of designers and performers has not yet been released, houses like TONI PAYNE, OUCH, and 5VE, and artistes like LOOSE KAYNON, SKUKI, WILLY BANG, DIPP, and LAMI, have already stated their commitment to the event!
For more information, please check www.thesegenes.blogspot.com

Monday, January 4, 2010

WE THINK YOU SHOULD KNOW

Hi guys!
Welcome to the New Year... that is, if you haven’t got tired of it already!
LOL!

So 2010 promises to be fun, and we thought we should run some things by you!

THESE GENES sickle-cell project which has been doing work in the background quietly in 2009, will be making noise in 2010! Please click on the link below to join the group on facebook for regular updates!
First event March, noise starts now!
http://www.facebook.com/group.php?gid=7020801550

All you coca-cola addicts out there can join the facebook group here!
http://www.facebook.com/group.php?gid=16090842735
Its all about the love for that drink mehn!

With three singles released just as 2009 wrapped up, CON.tra.diction is poised to make 2010 her own!
Please join her facebook group!
http://www.facebook.com/group.php?gid=2429104302
Listen out for her singles on any of the radio stations, but if you can listen online, or would like to read a review of the singles, then please check this link out!
http://www.wepluggoodmusic.com/2009/12/we-plug-2-you-tosyn-bucknor.html
She is also on twitter
www.twitter.com/tcontradiction
And on Reverbnation!
www.reverbnation.com/misscontradiction

Dont say we did not tell you o!

s.h.a.r.e fans, this is your year!
http://www.facebook.com/group.php?gid=19663672161
Please join the facebook group to catch updates on facebook!
You can also check the blog from time to time
http://sharenetworking.blogspot.com/
The calendar for 2010 is up, and there are at least two events a month this year!
To make things easier for you, you could register to get updates straight to your phone! There is a service charge for this and to find out more, please send a text to 08023066252!

So what else have we missed?
We are still up for charity
http://www.facebook.com/group.php?gid=167774275843
and we love Zapphaire Events!
http://www.facebook.com/group.php?gid=167774275843
and please check out our blogs!
www.myfictionalbreakup.blogspot.com
www.speechgirlbucknor.blogspot.com

Thursday, December 24, 2009

Have yourself, a VERy, merry christmas!!!

Sunday, August 23, 2009

Random

A member of the THESE GENES team has been ill for a bit. It really was sad but we believe that he will get out of it and be healed completely in Jesus name.

When people living with sickle cell fall ill or die, people seem reluctant to tell me, or when they do tell me, they look at me to see my reaction
My reaction hardly varied though.

It is very sad to hear that someone is ill, or that someone has died. But ever since i realised that it is not how long one lives that counts but how well, i learnt to celebrate the hours one has, and stay connected to GOD.
Death is promised to all, so that has never been a fear of mine.
My biggest fear is being alive but not breathing.

I salute Subi who is one of the most 'alive' people i know who lives his life to the max!
It is well with him

Saturday, August 15, 2009

I had a party EVERY birthday when i was growing up. Now i understand why!

Saturday, August 1, 2009

Falling in love with a sickler

So what happens if you fall in love with someone living with sickle cell
Thats what i got asked yesterday!

Maybe someone shd ask my exes cos they never seemed to mind

Ill say this tho...

Be prepared and realistic
Love does conquer a lot as families of people living with sickle cell can attest, and love helps us thrive better. Knowing we are wanted

1. Dont be afraid to speak about it and learn what being a sickler means to that person!

2. Find your own special way of dealing with it. My family and i, we use humour. What is your thing

3. Always be there, always be in love, never make them feel like a liability

Ill write on my own personal experiences in terms of love, next!

Wednesday, July 29, 2009

Check out the interview on www.bellanaija.com

I wont lie, sometimes i read interviews where i speak about living with sickle cell and i cringe
Am i the only one?

Then i realise

Its also part of the work i do...
GOD please help me

Saturday, July 25, 2009

Sometimes it is really hard to differentiate between normal back ache, and crisis pain